.cystic fibrosis.
.the blessings that are attached.
I've been overwhelmed with thankfulness the last few months. I've had many days that I fight the tears as I think of the blessings that we have received. Bransen's diagnosis with Cystic Fibrosis didn't only change our daily lifestyle, it also was a HUGE financial burden. We've slowly been able to do what we can, tapped into our savings and made payments to those we owe. I will spare you of the actual numbers, but to put it into perspective ... one of his inhaled antibiotic medications is $4,000 for a one month supply. (thankfully, we have an insurance that only requires a co-pay on that one!!) and his Respiratory Machine that costs about as much as a car.

During the fundraising at PCHS, a District employee who also works closely with the Angel's Hands Foundation in Salt Lake got word of the event. She contacted Robbie and invited us to become part of their foundation. This in particular foundation helps families with children who have rare childhood diseases. Although Cystic Fibrosis isn't that rare anymore, they allowed us to become part of their "family". Back in the end of November, we were asked to register our family through some small amounts of paperwork and information. Part of the registration we were asked to list all outstanding balances that we were currently burdened with because of our child's disease. Since August, Bransen's Respiratory Machine was set up on automatic monthly payments from our checking account. Well, January rolled around and I told Robbie that the January payment hadn't come out yet. After investigating through some receipts and paperwork ... our December statement had the words "PAID IN FULL" stamped on the bottom. Ummm, WHAT!! I somehow skipped over that statement and just threw it in our file. I could barely contain myself. I was in shock and completely lost it. Robbie and I were absolutely amazed at the blessings that continue to come our way.
AND NOW...
Another event to bless our family. We were just made aware of this. It's so new, that I don't even know who started it. But, once again ... my heart is bursting..bransen is a loved little boy.


8 comments:
How fun!! We will try to be there! Bransen is soooo loved, and your guys are too! We love you guys so much and can not believe what strength you and Robbie have. It is amazing how down to earth and generous people can be, especially strangers! I look up to you guys so much, and we are so blessed to have you guys in our life.LOVE YOU!
Wow! That is so amazing! Thanks for sharing. I had no idea how much all of that costs, how wonderful for everyone to help.
Wow that's amazing Shaylyn! However I'm kinda not surprised that others recognize what good people you guys are and such a great little family, who wouldn't want to help?! It's situations like this I wish I had more money to share with others, like you guys..we will do what we can and show you are love and support.
LOve you guys, stay strong and positive,
Breezy
Oh my gosh! That is so amazing! I bet that is a huge burden lifted off of you guys. I can definitely relate. Insurance and medications stress me out more than anything. That is so amazing all the help that you are getting:) I hope that you all are doing well. And if you are ever up this way let me know, I would love to get together with you and your husband:)
will you put me on your email account.
Tammy
tlrauzi@gmail.com
That is so cool! Your cute family is loved!!
How exciting and what GREAT blessings for you guys!! You guys must really be amazing!! :)
People are amazing aren't they, we had similar experiences.
To answer your question... she didn't start doing PFT's until just a year or two ago. Maybe 6??? I remember them saying they can't really do it until then....
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