12.30.2010

Holy..

SNOW!

I seriously can't belive the amount of snow we got yesterday.
26 inches.

Luckily for us - we didn't have anywhere to be.
We got to stay warm and cozy inside....

UNTIL:
Bran insisted in "building a snowman"



 Robbie and Bransen built cool tunnels and snow chairs instead.





Kohler and I watched from the window.

and Kohler ate snow.


and just for Robbie's benefit and entertainment.
it was "snow" much fun!

12.15.2010

nothing beats free tickets to...

ELMO





thanks to the Cystic Fibrosis Foundation for the "free"
(minus the $10 parking fee - are you kidding me!) tickets.

the boys LOVED it!
(excluding Robbie; but he endured for the love of his family)

12.01.2010

family fun time

.family bowling.

.robbie.
attended for the sake of his childrens (and wife's) happiness.


.shaylyn.
official "keep kohler from running down the bowling lanes" controller.


 .kohler.
the most excitement his little eyes have ever seen.


.bransen.
a little dramatic.

(wait for it.  wait for it.)

11.20.2010

Kohler Proof Christmas

to avoid toddler fingers from touching and breaking tree decor:
this year we went for a different approach...


 christmas tree + 12 feet in the air
= kohler proof


and with the current tree situation -
the old sleigh has a new home...
and two new riders that think it's the funnest thing in the world.


p.s.  no we didn't skip the turkey holiday.
   it's still Thanksgiving on my front porch.

11.09.2010

cystic fibrosis milestones

Our daily CF schedule.

15 MG Lansoprazole (generic Prevacid)
2 ml SourceCF
5 MG Mephyton (Mondays and Thursdays only)

Creon 1212 Enzymes (2 w/ meals - 1 w/ snacks)
Creon 1206 Enzymes (1 w/meals)

Vest Therapy
Albuterol (2 puffs)
Pulmozyne (inhaled medication during vest therapy - night only)
Vest Therapy (30 minutes - morning and night)

.bransen handles all of it like a CHAMP.

along with all our daily CF medications..


We've had hospital stays for weeks at a time


 .bransen handles all of it like a CHAMP.

we do our "boat rides" morning and night EVERYDAY for 30 minutes
and you guessed it...

.like a CHAMP.

but.

let me share with you the "proudest" moment during our CF time

Bransen has to take pancreatic enzymes EVERY time he eats ANYTHING. 
Pancreatic Insufficiency is a major part of living with CF. 
His pancreas doesn't absorb the natural enzymes and nutrients in food.
Which causes him to not gain the correct amount of weight for his age.

So because of this - for the last 1.5 years I've had to carry applesauce EVERYWHERE we go.
He wasn't able to swallow them whole. 
So we've had to open the pills and spread them over applesauce.

a horse would have trouble swallowing these things!


...well my friends - guess who doesn't need applesauce anymore....
he learned to swallow them whole!

Of all hard things that this little three year old has to do this year 
this makes me the most proud!